the stroke association the stroke association

Adjustment After Stroke Study

Previous studies have shown that some people experience social inactivity and social isolation following stroke. This may impact negatively on peoples’ functional abilities, mental and physical health, well being and quality of life. This sub-study complements the system of care trial by following-up approximately thirty trial participants to investigate longer-term adjustment after stroke. In particular, we aim to understand the processes and mechanisms that shape social activity post-stroke. Understanding how and why people become socially inactive and isolated following stroke will help improve services and longer-term outcomes.

Primary Objective: to understand the processes and mechanisms that contribute to social inactivity and / or social activity post-stroke.

Secondary Objectives:

  1. Comprehend what patients and carers understand to be a good (social) recovery post-stroke
  2. Understand patients’ and carers’ experiences of life pre- and post-stroke
  3. Comprehend patients’ and carers’ experiences of the social and cultural context in which adaptation post-stroke occurs.
  4. Develop a better definition of poor adjustment post-stroke.

The trial data will be screened to identify those stroke patients who are less socially active than we would expect and those who are more socially active than we would expect (based on pre-stroke and twelve month post-stroke Barthel and Frenchay Activities Index scores). We will approach approximately thirty of these patients and their carers / significant others to see if they wish to take part in this sub-study. We will use a combination of qualitative methods, including semi-structured interviews, limited observation and solicited diaries, to understand the process of adjustment following stroke.

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Recent Status
Data collection is now complete. 22 stroke survivors and 12 carers took part in the study. Analysis of the data is complete and has enabled identification of trajectories of recovery post stroke and barriers and facilitators to adjustment.



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